MovieChat Forums > The Boy Whose Skin Fell Off Discussion > The Boy whose skin fell off

The Boy whose skin fell off

posted 18 years ago by ILoveLucy17
3 replies | jump to latest

I Watched this really late one night, and ever since that First Time I Watched it I have been wanting to watch it again but it is NEVER on!!! =-( Though I bawled throughout the entire movie, I absolutly fell in love with Johnny and his attitude towards life. He was such an amazing man!!!

[–] kerosene99 18 years ago

I loved this documentary. Jonny was such a strong man to have coped with EB for his 36 years. It is very inspirational, and makes you feel so fortunate for all that you have.

[–] stinkflamingo 18 years ago

im watching it right now

[–] thing_in_the_moonmad_tsh 17 years ago

I have EB myself, and knew Jonny relatively well.
It makes my heart glad to know that, despite everything Jonny went through, he has touched so many people around the world.
It was the best parting gift EB sufferers could have ever received.