The Boy Whose Skin Fell Off (movie): A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agoniz... Discover the latest Discussions, Reviews, Quotes, Theories, Explanations and Analysis of The Boy Whose Skin Fell Off below