About the vent...

I'm not trying to be mean or a jerk because I honestly have a valid question.

Why did Steve go on the vent? I know Steve does not want to die, I get that. However, he talks about how life in his condition is horrible and unbearable and he sees what it does to Michel. I just wonder why he went on the vent? I know he said he wanted to be there for his wife and son but he is so miserable and unhappy and with the vent he could live another decade or two.

My father-in-law passed away from ALS in July 2016. He had bulbar onset so he lost his speech before losing motor function in his limbs. My husband and I talked about what we'd do if we were in that situation and I told him if I ever had ALS, when the time came to decide on the vent that we would talk about it, but I would most likely refuse it. I would live my life in whatever capacity I had until that time came. At that point I would have to give my husband's life back to him and let go. Would I want to? No. I don't want to die but I know I'd just get worse with no hope of ever getting better and he would have to take care of me and I don't want that. I figure after two to five years, he would have done enough and I would have had enough. Could I possibly change my mind? Of course, I could and may go back and forth about it a million times, but it is not likely. Not because I want to die but more because I don't want my husband to spend so very many years of his life taking care of me. Would he? Of course, but I don't want him to. I'd want him to go live the life he saw us living, he'd just have to do it without me.

Now, am I saying that this is what Steve should have done? Absolutely not. I just know that for me, I wouldn't be there for my husband, I'd just be there. He would be the one who was there for me.

Please just think about what I wrote before you flame me too bad.