A great doc but...


First, I want to say that the Taylors are very endearing people and I was very moved by the film. However, I wish the director would have included more information about the implant and how it "really" works for people who have never heard a sound in thier entire life. Maybe some viewers would have been more understanding regarding Sally's frustrations. From what I know (and I wish this was in the film) with the implant, sounds are just a mish mash of noises that are unrecognizable to someone who has been hearing impaired all their lives. A hearing impaired person with the implant has to learn to distinguish between every single sound that exists in the world, in order to recognize it. That is hard to do if you never heard (learned) sounds before. Imagine listening to a foreign language that you can not understand and struggling to learn that language. Or, think of Feral children who never learn a language. If a child does not learn to speak in the first few years of life, the chances of learning to speak as an adult are slim. I wish the director gave an example of what her parents were really going through regarding the hearing process and the implant. Basically, the Taylor's endured a lot of strange cling, clang, bing, bong, ting, bang, noises and hearing people would hear the same noises and recognize a car horn, a bird chirping, a door slamming.


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MedievalinNYC, I must admit I came to this post thinking it was a flame on the documentary. However, you hit the nail exactly on the head instead.

I had to continuously rub my cheeks because I was making the most horrible of faces while trying to stifle tears watching Sally's frustration.

I caught that immediately, that she was overwhelmed and kept saying over and over again to my family, "Imagine girls*, this is the first time she has heard anything in 60-something years."

* My daughters

In the store (I think) she mentioned that she thought she was not able to distinguish noises. And then when she talked about her husband hearing everything and she was not.

It just tore me up inside because I understood what was going on, but like you said, the doctor did not explain well enough -- or perhaps he did and we did not see it -- but in any case, Sally could have used a tad more support.

(Again though, she may have.)

One thing that actually upset me a little, like, "You jerk." was when the doctor said to Sally I think, "What does it sound like?"

Maybe it was the husband... because he then said, "I don't know... what does blue look like?"

Silly doctor.

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Spam,

I was prompted to write this post because of trompos' post titled "Sally is a bit of a baby". I agree thaty the doctor did not provide enough info and I would have liked to have seen commentaries from other professionals.


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i know!!!!!!!! does it sound like a beep or a click? like they freakin know what a beep or a click even is!!!! stupid!!!!

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I remember reading other interviews from deaf adults getting implants, especially if they were deaf before acquiring a sound vocabulary. Yes, a sound is heard but there is no association for that sound so it would be the same as white noise to us. I can't believe there wasn't more follow up training and therapy, just that it was not included in this film.
I did love this film and understand Sally's frustration. I couldn't believe how easy it was to understand Paul's voice, could he have had later onset or just more residual hearing? He seemed to take to the implant quicker, filtering out noise and associating sounds.
I do hope they did become more reconciled to what they would be able to understand later on. Was there any noticeable difference in their speech patterns later on?

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yes, why no therapy post implantation?

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I have no idea why we cochlear implantees have no therapy for post implantations. I will ask my audiologist next time I see her. I basically had to relearn how to hear on my own, and it's basically just wearing your processor as much as possible. Yes, there are times it's very trying, and the noise level can wear me down quickly. Even my ears can ache from the noise level and headaches are a frequent side effect. I work in a metal machine shop, and let's face it, when I'm using rotary grinders, I do not want to hear that damn machine going at a very high pitched whine. Sally tends to make the mistake of cranking up her processor in very noisy envirnoments while I've learn to turn it down or I will be very cranky, and I'm a good 25 years younger than Sally. The Taylors were very brave to try and I give them credit for trying to learn to hear. There are cases where people who were implanted and never really were able to hear or be able to use their processors. It's not often but it happens. There's almost a casualness to the whole cochlear implant process. It's like, oh well, there's a device to let you hear. Let's go for it without realizing how much time it takes and how much it takes out of you. I'm glad I got 2 cochlear implants, but there's always a price to pay for. I've learned to take sound in moderation or I go into sound overload.

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to spoonladyjr2: i know children get intensive therapy the first year which is called the learning to listen year. i don't understand why you or the taylors did not receive speech therapy. i will have to research adult cochlear implant candidates. thanks for all the information you posted!

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I have to disagree with you, NYC. I think the director/narrator did a decent job of painting that picture for the audience. There is even a clip of Sally confessing her difficulty and how its "too late" for her to learn to hear like everyone else. The narrator alludes to this idea throughout the latter half of the film... maybe you missed that half? GIve it another view. Upon viewing it for the second time, I found it easier to watch objectively and devoid of all emotional meltdowns. I noticed, for example, that the narrator, doctor, and most of the family members all mention something relating to the topic in your post.

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I will take your advice kk and re-watch the film. A second viewing may be "devoid of all emotional meltdowns" and I can look at the film with a more logical perspective (paying attention to breif remarks that I may have initially missed.)
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I have 2 cochlear implants myself, and when I was watching the Hear and Now movie, I could understand exactly what the Taylors were going through. I wasn't as emotional as Mrs. Taylr was, but yes, it's a very draining process going thru the surgery ( worse earaches in my life) and learning to rehear again. One thing I found that the cochlear implant literature doesn't always tell you, is that you have to basically relearn how to hear again, and it's very different from just using hearing aids. I didn't really have much to go on once I underwent the surgery and then learning to hear. I didn't have any training, any post-op rehabilatioin, or being able to talk to another cochlear implantee. Since the Taylors were deaf from birth, they never had a sound reference to draw from. I didn't have a sound reference to draw from either, but being oral, and using hearing aids since I was 18 months, I learned to use my implants efficiently and very well. The first implant took a year to relearn to hear. The second implant only took about a month and half to relearn. The movie made it seems like Sally was having a bad time adjusting, and given her age, the fact she never heard before, made it even harder on her. I got the feeling she expected to magically hear like a normal person, but no matter how well the cochlear implant companies try to make implants sound normal, it will never be normal, since you don't get the full richness of sounds natural hearing has. I can hear so much more, and often subtle sounds that I didn't hear before. Again. like Sally, the normal world is deafening loud, and I cannot stand to hear while driving or using power tools. Let's fact it, some sounds are better not heard. Sally was wise to take off her processor while driving or in very loud envirnoments. I immediately will shut off my processors if I'm exposed to very loud sounds.
An implant in a way is a last resort. Once it is implanted in your ear, you lose the rest of your remaining hearing, and it stays in your head all the way to the grave. For me, after I lost what was left of my very limited hearing, the implant was my last, best choice, and I don't regret being implanted. I could do without some of the extremely loud or high-pitched sounds, but I can interact so much better with people. As a teacher, it is imperative I hear well, and my implants do help a lot. I can only hope the Taylors get what they can out of their cochlear implants.

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It's interesting to know about real experiences with cochlear implants. When I watched the film, I was very curious to know how a person with the implants actually hears sounds compared to a person who is born with the ability to hear. After doing some research, I finally could imagine the foreign sounds people with implants are bombarded with in daily life. I wished the film went into that more.

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