Hypertrophic Cardiomyopathy....


So I have this disease, like really bad, and I have to say even though this movie is exceptionally sad it was great to see the disease getting some exposure.

Kimber

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My heart goes to you. Keep fighting

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Thank you.

Kimber

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Is this for real?


I'm sorry to hear that. I'm a nurse and I was wondering what procedure has done and what are your current medications. I got to ask you if it's not very offensive or anything but did the doctors had some talks about your life span?


I know Hypertrophic Cardiomyopathy is a very serious cardiac problem and the patient usually lives a short life span with/without medical assistance.


If you don't want to response it's okay! I'm sorry for being too much in detail.

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It's okay. I died when i was 15, just dropped dead, we didnt know I had it until then... But they resuscitated me and I woke up in the hospital. They put a pacemaker/defibrillator in me and put me on a beta blocker and an antiarrhythmic agent. I am okay now, but it just kinda sucks not being able to do a lot of the stuff I used to be able to do, plus living with the uncertainty of tomorrow.

Kimber

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enjoy the life, there is lot more you can do

Live for today,

I wish I could give some years of my life to you, but anyway :p

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Isn't a heart transplant possible for this kind of stuff?

It's really grim with today's techonolgy, and no one being able to do anything about it.

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