This is such a great documentary. It was so sad, of course I cried at parts. And I had never heard of his condition before. I was just amazed at what a positive outlook he had on life. Jonny Kennedy certainly was a hero.
Aim above morality. If you apply that to life, then you're bound to live life fully.
My heart was broken inside when i watch this such touching story about this great sese of humour guy, who had to go through pain in his life. I cried through out the programme, I will never forget about it.
shareI am not one to cry when watching TV or movies, but this made me cry, how can someone not cry when watching this? I sometimes lose hope in humanity because of all the evil that’s done in the world, and almost give up on people, but someone like Johnny comes a long and reminds me that there truly are angels that walk amongst us, even if we don’t recognize it at the time. Rest in peace Johnny, although I know resting is the last thing your doing right now ;) You had/have a lust for life that most of us can only dream of. Thanks for blessing us all with a perfect example of a whole human being.
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I THOUGHT THE PROGRAMME WAS INSPIRING AND OF COURSE AT TIMES VERY SAD, I LIKE MOST WHO WATCHED IT WILL NEVER FORGET JONNY, HES ONE OF THOSE PEOPLE YOU NEVER KNEW BUT REALLY WISH YOU HAD. MARK STEVENS
shareI have a two year old son with the same condition as Jonny. I was never fortunate enough to meet him before he died. I have met other sufferers since, and I can tell you, some of them can be just as inspiring.
shareThis movie made me feel ashamed about myself. I have been doubting about the value of life lately and been kind of depressed and then I see someone with so much limitations like Jonny, still beeing positive about life and having energy to help not only himself but others aswell. I cried and I said to myself to be grateful for the gift that has been given to me, a healthy life.
shareI saw this last night for the first time - I think initially the rather grotesque title turned me off, but after the opening scene when his brother says, "It's sort of relief he's gone, really," and that poor pale corpse was hunched in the chair, I HAD to watch it.
What a beautiful, amazing soul - I, too, couldn't help but be inspired by his humor, goodwill & his love of life & tender sense of mortality. It definitely put things in perspective for me.
Godspeed, Jonny, and thank you.
"Some days are weirder than others." - HST
very sad and yet very funny.
they mentioned a little Monty Python in it :)
"i'm not dead yet!"
Mommy, Can I Go Out And Kill Tonight?
Its gets me deep inside at the point where his mother is changing his dressings. He is in SO much agony that he yells at her for taking the dressings off too quick, but despite the excruciating pain he immediately apologises to her. Amazing, i am getting upset just typing this. One of the most inspiring stories i have ever heard.
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