MovieChat Forums > The Boy Whose Skin Fell Off Discussion > A tactless, tasteless, offensive and dis...

A tactless, tasteless, offensive and disgusting documentary


Completely unneeded material that is a times border line offensive, a film in which a man suffering from a very painful and embarassing disease has cameras shoved in his face as he is dying, cameras in the room when his body is slumped in his wheelchair. Us watching him as he is rebandaged by his mum which is a private matter that we didn't need to see and is disgusting.

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He wanted it to be there, so people could see how the disease affected him & those around him.

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[deleted]

Are you for real? Were we watching the same documentary? Every scrap of material that was used in this documentary was not only necessary, it was obligatory. To pay the proper respect to the man, and to the family, the director included all the facts, scabs and all, if you'll pardon the pun. Every once in a while, we need to come out of our 'desperate housewives and x factor' shell and, let's be honest about it, be horrified by the harsh realities of life. Johnny lived his life with the greatest of optimism, and a lot can be learned from him. I was inspired by his courage and strength, moved by his suffering, and relieved and distraught for his brother and mother when he did pass. This film did everything it was meant to- showed the harsh realities of this terrible disease, brought publicity to his campaign, and raised a hell of a lot of money for the DEBRA charity (check their website. To have diluted the candid parts like the bandages being changed would have been like denying they had to be changed. This is the reality of his condition. He has to do this all the time. Not to have shown the pain he suffered would have been like denying he ever had the pain. It also made his bravery in the face of all his suffering even more admirable. He achieved more in his short life than many ever will. Johnny was, and still is, a hero.

In summary, you're an idiot. Change the channel next time and watch Fluffy Kittens playing in a their basket on the children's network. Alternatively, go to the back yard and bury your head in the dirt. I rarely reply to posts like this, but I felt compelled to by your complete stupidity.

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Do I really need to here the comments about constant masturbation? No because it is tasteless and disrespectful

Do I really need to see him in pain while his bandages are taken off? No because some things need to be kept private.

Do I really want to see him dead in his wheel chair? No because it is unethical

Do I really want to watch someone physically and mentally detiorate on screen for entertainment? No because it is disrespectful


I have nothing wrong with what he did and how he led his life but I'm really criticising the filmmakers because they were VERY undisciplined and exploitative with what they did and they were offensive, if I was a member of Johnny's family I would have refused in having anything to do with it. Do me documentary about the disease instead of showing some disrespectful crap about the days leading up to his death, and if you want to do that then try and restrain it a bit more.

http://ugbug67.blogspot.com

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You really didn't get it did you? He wanted those things clearly and vividly shown in the film. He wanted (as did his family) to document every real and painful aspect of his affliction. How else do you highlight and bring something like this to world attention? By hitting the viewer where it hurts the most - the eyes. Too often do we blinker ourselves from the sadder, more upsetting aspects of our everyday lives, and focus instead on superficiality. It's unfortunate that the complete package didn't meet to your taste, but films are a form of art and, as such, are removed from the democratic field. They are not meant to be enjoyed by everybody and will always have some critics. But the reasons you stated for your disapproval tell me nothing but sad things about your attitude to the world. May you never suffer in life because you clearly don't have very good coping skills! For the one opinion (granted, so far!) that didn't approve, there are surely thousands that not only did, but were far more moved than not by it's 'scabs- and - all' approach, rather than a homogenised, diluted, and rather unreal portrayal of the events leading up to his death. The great thing about TV is that... guess what? You can change the channel! A skill you'd benefit from practicing. Not just with the tv either..

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This is the first time I've been genuinely moved to respond to a thread on here. Why? because I really thin you've missed the point and lost out on what could be gained from the finest documentry I've ever seen. To answer some of your questions:

Do I really need to here the comments about constant masturbation? YES because these references show him in a human light - a bloke with all the same needs and urges as any other man his age. It's funny how the blend of the disabled/ill and sexuality makes us feel so uncomfortable. I'm no saint - I've worked with disabled adults and done sex education with them and I felt really uncomfortable about it for some reason.

Do I really need to see him in pain while his bandages are taken off? YES because he wants people to understand his illness. Not in a patronising "God bless him" way but through seeing the suffering he (and others with his condition) goes through every day. Whilst we can empathise we will never understand.

Do I really want to see him dead in his wheel chair? YES this is a vital piece of footage - he wants us to be with him on his journey to the end. He gave his permission and it would be a cop out not to genuinely follow him to the end of his journey.

Do I really want to watch someone physically and mentally detiorate on screen for entertainment? 1. He didn't mentally detriorate from what I saw - still had that great wit. 2. Not everything on tv is 'entertainment'. If anything, this was education - something that informs you, makes you think and take stock of your own life.

I really hope you give this inspirational documentry another go with a 'clean pair of eyes'.

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Do I really need to here the comments about constant masturbation? YES because these references show him in a human light - a bloke with all the same needs and urges as any other man his age. It's funny how the blend of the disabled/ill and sexuality makes us feel so uncomfortable. I'm no saint - I've worked with disabled adults and done sex education with them and I felt really uncomfortable about it for some reason.

Granted it does make you feel uncomfortable but I was in a class where people weren't shocked by it they laughed at it, it felt like it was inserted for a cheap gag.

Do I really need to see him in pain while his bandages are taken off?YES because he wants people to understand his illness. Not in a patronising "God bless him" way but through seeing the suffering he (and others with his condition) goes through every day. Whilst we can empathise we will never understand.

I know he wants people to understand his pain but showing that was sick and as I have said tactless. I see the pain he has to go through by watching him climb into bed and try to put on his hat and him telling us what it is like to have no hands, I didn't the filmmakers to take it further by showing us something that needed to be kept private.

Do I really want to see him dead in his wheel chair? YES this is a vital piece of footage - he wants us to be with him on his journey to the end. He gave his permission and it would be a cop out not to genuinely follow him to the end of his journey.

Well I just didn't feel that way, I don't want to see a person dead on screen just to complete the journey of that filmmakers took. It would have been more poignant if it ended on his funeral without seeing his corpse.

Do I really want to watch someone physically and mentally detiorate on screen for entertainment? 1. He didn't mentally detriorate from what I saw - still had that great wit. 2. Not everything on tv is 'entertainment'. If anything, this was education - something that informs you, makes you think and take stock of your own life.

He does mentally detiorate when he is coming back from London and we watch him die. As you say the guy had great wit so a great deal of it was attempting to be funny, so I would class that as entertainment.

http://ugbug67.blogspot.com

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"tasteless" ... "disrespectful" ... "kept private" ... "unethical"

What part of "Moral absolutism on your part does not constitute a law to be abided by on our part" don't you understand?

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CHANGE THE CHANNEL THEN!! DURRR

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You know what OP? **** you. People like you are the reason the world is such a sick, unsympathetic craphole of a place.

- "And the answer is The Shroud of Turin."
- "What did we put?"
- "... Lisa Stansfield."

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You completely missed the point. Did you even watch the whole film? Or come to this opinion based on what you thought you knew about him and the film? Had you gotten the message ,you'd have seen Jonny wanted the camera there and wanted to tell his story.
Before you give your opinion, get ALL the information you wanker.

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