I'd fancy Rory


I would. I just like him. His looks, his spirit. His cheekiness. I think Romolo's character is an idiot for not liking him back. I haven't even seen the film (not exactly easy to find, is it?) but I've seen the trailer and it made me wish I knew someone as cool and interesting as Rory. I'd just have the biggest crush on him. :D

Love the piercing.

In heaven, all interesting people are missing - Nietzsche

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Siobhan *did* like him... that was the problem.

~*~Words fail. So many words fail.~*~

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Then why didn't she do something about it?

Just saw the movie btw. She could've at least kissed him once.

In heaven, all interesting people are missing - Nietzsche

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I thought Rory was gorgeous and sooo charismatic. I'd definitely go for him.

~Tasha

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Yes he sure was, and somehow I think he has gotten "some" here and there throughout his life. Which to me makes Michael's plight all the sadder.

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I'd fancy Michael :).

-Amanda

"She will remember your heart when men are fairy tales in storybooks written by rabbits"

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Me too!!!

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The reason is because girls don’t go for guys with genetic diseases like DMD, even if it’s not hereditary. I mean why would anyone in their right mind voluntarily put herself in a position where she would have to take care of someone who would be almost completely dependent on her physically? It’s different from when say a husband for example, gets into an accident after several years of marriage and develops a disability because when you can foresee the circumstances, you don’t choose it.

Actually, I’ve asked someone about this particular issue once and according to her, girls choose not to fall in love with guys like Rory, to which I agree to a certain extent since you can’t really chose who you fall for per se and yet on the other hand there is still a choice whether you act on those feelings or not. You could say it’s cruel for anyone to say and it sort of is, but people have good hearts and it is just another way for a woman to choose not to lead someone on and cause him a broken heart.

Crushes perhaps, but anything more is unrealistic. Think of it this way. Why would a girl go for someone who can’t even reach down, let alone find the strength to wipe his own ass? How can that guy be the one she sees when there are so many other bachelors who are deserving of her love? It’s unrealistic and impossible.

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[deleted]

You know I’d hate to think we live in a world where romance for people with disabilities is hopeless just as much, but a lot of times what we don’t want to accept doesn’t make it any less untrue. After living with Duchenne’s for 26 years you eventually learn where your place is in the world and no matter how much hope you still have there is always a truth that will continue to linger, and truth is not something you can just hide from.

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"i think you're very wrong. it is certainly possible to love someone enough to want to spend your life taking care of them. i'd hate to think we live in a world where people with disabilities have no hope of ever being truly loved by someone, as you suggest."

I totally and passionately agree.

"After living with Duchenne’s for 26 years you eventually learn where your place is in the world and no matter how much hope you still have there is always a truth that will continue to linger, and truth is not something you can just hide from."

You have Duchenne's?

This is probably a stupid question given the most recent topic of discussion, but of what lingering truth do you speak?

About love? About life? About both?

-Amanda



"She will remember your heart when men are fairy tales in storybooks written by rabbits"

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The truth about love of course, or romance rather. The truth that it's an impossibility no matter what anyone says, and yes, I think I definitely have Duchenne's, lol...

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Where do you live, man?

I don't believe it's impossible for you to find love, Ricky.

You're 26 right?
That's only one year older than me.

I'm not sure if I remember correctly, but did the movie say that people with Duchenne's don't live very long?
Or was it just Rory who somehow knew he wouldn't live much longer after age 21?

But don't give up hope so young, Ricky...if I didn't already have a boyfriend I'd be interested in you.

-Amanda

"She will remember your heart when men are fairy tales in storybooks written by rabbits"

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Really, you’d be interested in me? Well, what if I’m like a serial killer… of toes, lol?

Unfortunately, you’re right because people with DMD don’t live very long, according to statistics that is and yet on the other hand, with the medical advances in the past couple decades people like myself have been able to live longer, especially with a ventilator, which I have been on for several years now. Rory could have lived longer had he started treatment for his CO2 problems as it would have helped his pneumonia, if I remember correctly. You could read some of my stories on my website if you want.

But you know what the funny thing is? When I checked the MDA website the other day as I was “correcting” someone here and forgot whether my very own genetic disease affects voluntary muscles or involuntary (it’s voluntary by the way), they updated the age of death from late 20s to early 30s instead: oooh, such a huge difference right, haha…

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"You could read some of my stories on my website if you want."

Sure, what's the link to your website? :)

-Amanda

"She will remember your heart when men are fairy tales in storybooks written by rabbits"

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It's http://www.dearricky.com

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Nice site!

I didn't realize that Duchenne's makes your limbs stop working little by little...I wonder if Rory could walk once upon a time.

You have a poet's soul, Ricky...I love the music on your site :).

-Amanda

"She will remember your heart when men are fairy tales in storybooks written by rabbits"

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Thanks for the complement, Amanda. I'm glad you enjoyed my blog.

But yeah, Rory I'm sure did walk once because I was walking until I was between grade three and four.

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You're welcome! :)

I'm sorry if there were obvious links on your blog (because I miss things sometimes), but are there any current pictures of you on there?


-Amanda

"She will remember your heart when men are fairy tales in storybooks written by rabbits"

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I don't really have a section for pictures on my blog, but there are several goofy ones of myself if you go a few pages back in one of my journal entries, lol... you should check out the 2 songs I wrote in the Music section too.

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sure you do, but it still has to hurt. But, i suppose you would also feel extremely lucky if you made it to 26 since most people with Duchenne's don't make it much past 20.

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ive got a type of muscular dystrophy - Rigid Spine Syndrome, its non progressive hooorooo for me. Rory was niiiiceeee coz im a bit like that, even kinda angry. I would say im half rory and half michael. The biggest issue put forward is the issue of dependancy and coming to terms with it. I had an argument with my da, he said that you've just got to get used to the fact that sometimes your going to have to ask for help. But the people in the world grow more apathetic and selfish. Meh, im also pretty lazy but i dont wanna use people as servants or something but sometimes i really do need help. But i feel guilty. But rory/james mcavoy is hot, i wanted to nibble on that nose ring of his.

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<it is certainly possible to love someone enough to want to spend your life taking care of them.>

I never thought so when I was young, but I do now.



God save Donald Duck, vaudeville and variety

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There are options. Just because you love someone with a disability doesn't mean you have to be their personal care attendant. In fact, MOST of the people I know in wheelchairs who are in relationships keep their PCAs and their romantic partners separate. Their romantic partner may choose to take on that role, but they don't have to. State care is a lot easier to get then it used to be, so you can get someone to come into your home to do what Siobhan did for Rory and Michael and keep it separate.

My girlfriend CHOSE to be my primary caregiver. She wasn't to begin with, but she felt nobody could care for me better than her, and it's only increased our bond/relationship. Nobody does care for me better than her, and sometimes it does get exhausting, but at the end of the day we'd both have it no other way.

-------------
LI Reviews - http://www.li-reviews.com
http://www.li-kids.com

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Correction to the last poster - DMD is genetic (in some way). It's passed down through female carriers. I know a man who had DMD and his son also had it. So, it is possible to pass it on. Also, if a boy has DMD, then his sisters all have the chance to be carriers.

As for this post, I have Spinal Muscular Atrophy (covered under Muscular Dystrophy) and I have been with my girlfriend/life partner for going on six years. She is able-bodied, but was able to see past my disability to the person I am. There are some people out there who do know how to look past a person's physical flaws, though some able-bodied people are just cruel about it. It just depends on the person.

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Literary Illusions - http://www.literaryillusions.com
MDP United - http://www.mdp-united.org

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I agree with Siobhan. You don't get to use disabilities as an excuse for missing out on romance. Have you considered the possibility that the problem is YOU, not your disability?

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It seems that guys like Rory pull a Cyrano de Bergerac, playing the cool and lose jokers that don't care what people say about himself or his disability but when he is alone with his closest friend he reveals that he does care and that he yarns to be loved.

Does anyone get what I am talking about here. Everyone has a right to love and be loved in return. Hell take a look are Christy Brown, he gained love and marriage to a beautiful woman.

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"Does anyone get what I am talking about here?"

Yep, exactly!

It's their defense...don't let most people know how you feel and they can't hurt you. I've never done that, but I've met a couple of people who have.

-Amanda

"She will remember your heart when men are fairy tales in storybooks written by rabbits"

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I guess we all behave like that sometime and maybe all the time.

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Wow, that's cold, even for you.

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Rory? Pfft.

I'd fancy Michael. ;D

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I'm with you girl!

Wifeys:
theepitomeofawesome
vjcowboys
sexymama345
rallee794

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ok. so back to the original question. You fancy Rory. And I would say I probably would as well, but I also love James Mcavoy. I think hes gorgeous so its unfair to really say

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Yes, the highlights in his hair only made him more gorgeous. Could those eyes be any more blue? :P

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Although it's too simple minded to say that it would be easy enough to love someone with a serious, or degenerative disease, the fact remains that love should be built on a mutual bond that cares and nurtures the other. This sort of love is not restricted to those with fully functioning bodies, or even fully functional minds - it depends on the ability of the person(s) to share that bond.

I struggled with this concept throughout this film. Knowing that my brother, who has [mild] cerebral palsy and autism will never be able to participate (bar some sort of miracle) in a romantic relationship is heartbreaking. I saw this same struggle reflected in Micheal's character. While it is sad that he will not be able to participate in that sort of relationship, his sweet disposition will make sure that he has plenty of people around him who love him dearly. Maybe that's better than having an 'ol ball and chain nagging you around anyway, eh?

I love moments like this. I like to wave at them as they pass by.

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Yes, yes I would. James McAvoy is hot wheelchair or no wheelchair. Rory was a fun guy with charisma, which is hard to resist, and they did say his sex organs still worked. It may not be the best decision, falling in love with someone with his prognosis, but love is rarely logical. It would be difficult to be around Rory on a daily basis like that and not develop feelings for him.

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Dear Ricky, are you still there?

i tried to go on your website, but to no avail.

i am so worried now.




~~~ "what *beep* said that!" ~~~

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Have you gone to his profile here? There's a link to his FB. He has regular updates.

Perry: "You, stop multiplying!"

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Well, I'd fancy Michael. He's so sweet, polite and smart. I remember little version of me (11 years ago!) said that he's my dream boy, hahaha. Now I'm a grown up and still wish to find my "Michael" :)

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