Myalgic Encephalomyelitis


I say this with kindness.
Whilst i applaud u for at least attempting to cover a neurological illness on your show, However i find it hard to take this seriously when cfs is mentioned as a disease entity.
I would ask the person who wrote the piece to please hear the very very basic info that M.E. is not cfs, and that advertising so does so much harm and contributes to the ignorance and pain you speaking of!
M.E. is an acquired neurological disease., similar to M.S. - You do not even have to have fatigue as a symptom!
I would implore you to read the following articles
http://m.hfme.org/site/webs_41924925/home?url=http%3A%2F%2Fwww.hfme.org%2Fmethemedicalfacts.htm
And
http://m.hfme.org/site/webs_41924925/home?url=http%3A%2F%2Fwww.hfme.org%2Fmeisnot.htm

As well as look at these two informative and factual sites
http://m.hfme.org/site/mobile#3131
And
http://thetinkerbelleandhummingbirdmeblog.blogspot.co.uk/?m=1

Your words reach may a wide audience, hence why it's extra important we help you learn the error of your ways, however well meaning they are.
I am sure you are an exceptionally busy person, but please, your taking moments to read and or pass on the above could help literally thousands and thousands of people.
I say all this with kindness and huge hopes.
Please contact me if you would like to discuss this further or if i can help in any way.
With gratitude, Alison Bell, severe sufferer and advocate, uk. [email protected]

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