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Robin's widow's essay in "Neurology"


Robin's widow, Susan, wrote a very personal essay in "Neurology" describing his last year or so and they myriad treatments and diagnoses that they pursued, never quite landing on Lewy Body Dementia while he was alive. She describes how some of the treatment he received was probably actually quite dangerous for him without a proper diagnosis and how he struggled with work. It is a long and detailed essay and definitely worth reading.

Link here: http://www.neurology.org/content/87/13/1308.full

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That was a really sad read.

For a man who very much lived inside his own head, could rattle off vast amounts of memorized material that he had sponged from everywhere, thought very fast and was quite obviously highly intelligent, LBD would have been devastating.

It seems he didn't want the world to watch him deteriorate, to the point where he didn't even want his own family and doctors to know about the hallucination symptom. This is besides the fact that LBD-induced paranoia and anxiety symptoms were eating at him on top of his lifelong struggles with depression.

The fact that his ability to perform at all would soon end, given he could no longer remember lines by the time he did Night at the Museum 3, probably was a tipping point. Was that his last filmed role? Films are usually filmed a year in advance and that's actually rather close to the holiday release date for such an effects-heavy film. In tribute videos I've seen, "Smile, my boy, it's sunrise." has already risen to become one of his saddest movie lines and it seems this is his posthumously released film that has most stuck as his last memorable performance. It also couldn't have helped that his last attempt at television went so poorly. I happen to be a big fan of both Robin from my childhood and SMG since her Buffy days, so that was sad to see (I haven't watched The Crazy Ones, but I was pulling for both of them in their career slumps). That career blow had horrible timing. The discovery of his illness was happening while making that show.

One thing that also pops out at me is that he aged pretty rapidly in his last years after having an appearance that was pretty consistent for a long time (IMO, he started off looking older than he was--certainly not looking only 27 as Mork!). He didn't radically change in appearance from the '80s to early '00s (or maybe we all got used to him looking roughly 40 and his hirsuteness aged him in earlier roles), so that sort made his rapid catch-up at the end stand out. He looked older than 63 at the end. And people have noted he looks thinner/not well as Teddy in retrospect.

And if he hadn't killed himself, the disease would have and it was going to be a miserable end where the real person would have barely existed. And it seems his case was a severe and rapid one given that the Lewy Bodies were so diffuse in his brain after only beginning symptoms in October 2013.

It's a shame he was misdiagnosed and some of the wrong treatments could have done more damage than good. There was no cure, though.

My dad, then a pilot captain for USAir, had Robin on his plane once in the early '90s right after Aladdin was released (I was 5 years old when Aladdin came out). He had wanted to welcome him aboard his magic carpet, but Robin seemed tired and introverted/quiet, so he left him alone. It seems my dad got to see a rare side of Robin where he wasn't performing for the public and extroverted. Of all the celebrities (of which there were many--my mom was also a stewardess who had such encounters), that's the one my dad was most excited about.

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I haven't read her work and don't care to-I agree with nileqt87 and have since I heard about his death.
As you said, while he often seemed completely out of control driving scriptwriters and "serious" interviewers crazy-HE was always in control- ALWAYS!
And yes I believe the thought, just the thought of losing that, while it would be scary for any of us,I'm sure petrified him-especially because of his precious children who he loved-as he proved-more than life!
And that's why I don't care to read anything that his widow has to say because I don't believe she knew him at all! If she did she would've NEVER tried to deprive them of their inheritance, about which I'm sure he's still screaming in heaven but even more so-if she knew him, she would've understood the level of depression he was feeling and would've NEVER left him alone in a locked bedroom!
Do you think Whoopi or Billy would have-HELL NO!They would've made sure that he was NEVER alone with his own thoughts-NEVER any locked doors-and if he tried they would've broke it down, dragged him out and had him laughing remembering the beautiful world he helped create for all of us!
It might sound heartless but I can't help but feel for his children, who got to know him all too briefly and for Ms Whoopi Goldberg and Mr Billy Crystal, who knew that part the rest of us only got a glimpse of- the only person who could make Christopher Reeve laugh in his hospital bed after his tragic accident!
Bless you Robin Williams!

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I haven't read her work and don't care to-I agree with nileqt87 and have since I heard about his death.
As you said, while he often seemed completely out of control driving scriptwriters and "serious" interviewers crazy-HE was always in control- ALWAYS!
And yes I believe the thought, just the thought of losing that, while it would be scary for any of us,I'm sure petrified him-especially because of his precious children who he loved-as he proved-more than life!
And that's why I don't care to read anything that his widow has to say because I don't believe she knew him at all! If she did she would've NEVER tried to deprive them of their inheritance, about which I'm sure he's still screaming in heaven but even more so-if she knew him, she would've understood the level of depression he was feeling and would've NEVER left him alone in a locked bedroom!
Do you think Whoopi or Billy would have-HELL NO!They would've made sure that he was NEVER alone with his own thoughts-NEVER any locked doors-and if he tried they would've broke it down, dragged him out and had him laughing remembering the beautiful world he helped create for all of us!
It might sound heartless but I can't help but feel for his children, who got to know him all too briefly and for Ms Whoopi Goldberg and Mr Billy Crystal, who knew that part the rest of us only got a glimpse of- the only person who could make Christopher Reeve laugh in his hospital bed after his tragic accident!
Bless you Robin Williams!

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https://www.datalounge.com/thread/17835450-robin-williams-wasn-t-that-funny-

Sorry to take this to a serious place, but Robin Williams had Lewy body dementia, which was only diagnosed after he died. It can cause a lot of his characteristic "manic" behaviors, from speed-talking, saying gibberish, being overly animated, imaginative, unable to focus, etc. I have Lyme disease, which has infected my brain, and I have increasing dementia-like symptoms and so I have read a lot about LBD because it has been linked conclusively with Lyme. Anyway, I think a lot of what we were watching and people were laughing at as Robin Williams' "performances" as himself were probably a man in absolute agony psychologically speaking. His wife said his brain had been hijacked by a terrorist, and it probably went on for much longer than his last year of life.

reply 13 5 hours ago

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https://www.datalounge.com/thread/17835450-robin-williams-wasn-t-that-funny-

I'm not sure your intention except to point readership to what is likely the most ill-informed post on a medical condition imaginable? It is okay to not enjoy or appreciate Robin's comedic talents or style. But you do realize that LBD doesn't lay dormant for decades, right? And that Williams' style had been long established since the 1970s?

I think I would have been embarrassed to post what you did, but I guess this is something you wanted us all to see?

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How the hell is what I posted "embarrassing"!? This isn't meant to be an insult towards Robin Williams' comedic style and talents, so don't come in and draw up your own conclusions like that. What I'm trying to get across is that LBD is a difficult disease to understand for most people. And just maybe there was more than meets the eye behind why Robin was what he was. I'm willing to bet that most people never heard of it until Robin Williams died.

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How the hell is what I posted "embarrassing"!? This isn't meant to be an insult towards Robin Williams' comedic style and talents, so don't come in and draw up your own conclusions like that. What I'm trying to get across is that LBD is a difficult disease to understand for most people. And just maybe there was more than meets the eye behind why Robin was what he was. I'm willing to bet that most people never heard of it until Robin Williams died.

Your post stated that "his characteristic "manic" behaviors, from speed-talking, saying gibberish, being overly animated, imaginative, unable to focus" may be attributed to LBD. My response to you was to note that that is an absurd conclusion to draw given that this comedic style of his was well on display in the 1970s and that LBD simply does not lay dormant that long to cause such a "condition" in his performance. Science does actually know that much about LBD and other such diseases.

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"Do you think Whoopi or Billy would have-HELL NO!They would've made sure that he was NEVER alone with his own thoughts-NEVER any locked doors-and if he tried they would've broke it down, dragged him out and had him laughing remembering the beautiful world he helped create for all of us!"

I've been saying this for some time. Of course, you don't literally break doors down, but you do make sure there aren't locks.

There was a "documentary" based on the police records of what went on the last night he was alive. I wondered how they would play it, but they got Susan Schneider's actions down perfectly. She had told the police she was in bed reading and had seen Robin come into the bedroom and get out his tablet. She "thought" it was nice that he was showing an interest in reading again. They played it according to her description to the police. It was chilling to watch the actress playing her simply watch him wordlessly.

I agree with the writer I quoted -- I'm not interested any anything the woman writes. She's colder than deep space.

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